A Letter to Kaye Products: The Quest for a Better Walker

Below is a letter that I have written to the assistive device and therapeutic equipment company, Kaye Products.  I have recently discovered some issues with their Posterior Walker that do not meet my mobility needs as a person with a disability who leads a very active lifestyle and also as a group ex instructor.  After seeing the success that 16 year old Matthew Walzer had after writing to Nike to ask them to make him a shoe that he could put on independently, I decided to post my letter to this blog in the hopes that it might catch someone’s eye.  Please read my letter below and feel free to share if you are so moved.  There are so many people out there besides myself that could benefit from these small adjustments.

May 14, 2013

To Whom It May Concern:

My name is Molly Carta. I am 24 years old, have Cerebral Palsy and have been a customer of Kaye Products since I was a toddler.  My parents and therapists have purchased many products from your company to assist me throughout daily life.  As an adult, I still use the Posterior Walker for daily mobility.  While this product has been useful and critical to my mobility for years, I am writing to you with a recent concern and request about the walker.

Despite having CP and difficulties with motor control and balance, I am a very active person. I have always understood the importance of staying in motion and taking control of my body and my health, so that I can live the life I want to live and not let my disability hold me back from anything.  This mindset shifted even more when I started working out at a gym after my insurance company stopped covering physical therapy.  In an effort to maintain the hard work and progress I had put into my life thus far, I began taking spinning classes while in college.  I had always wanted to ride a bike, but my balance issues prevented me from doing so.  A stationary bike that kept your feet on the pedals seemed like a perfect fit.  Even though this was challenging for me, I was so proud and excited to be taking part in a fitness class so mainstream that those feelings outweighed the difficulty.

Over the years, I began to take more classes and try new things.  There were few classes on our weekly gym schedule that I didn’t try at least once and my passion for health and fitness grew by the day. This past September, I decided to take this passion to an even greater level when I signed up for a Group Exercise Instructor Certification course through the Aerobics and Fitness Association of America. I didn’t only want to take classes, I wanted to teach them.  I knew that this was going to be a mental and physical challenge for me, but that had never stopped me before.  About a month ago, I began teaching a class geared toward people with disabilities and other limitations.  The class is taught from a chair and focuses on general strength and low impact cardio.  However, I would eventually like to expand the class to be a fully functioning group fitness class.

I am writing to you in the hopes that Kaye Products will be able to provide me with some assistance with the difficulties I have noticed with my Posterior Walker.  One of my main concerns I have been struggling with is the ineffectiveness of the rear brake system.  I currently use silent rear wheels with internal brakes.  Not only do these wheels seem to wear out very quickly (the last pair I had lasted not even a full year), but the brakes do not seem to work on many surfaces.  When I am taking and teaching classes, my walker is constantly sliding backwards both while I am holding on and if I do have to let go for any reason.  You can imagine how difficult this is, and the additional energy it takes, to always make sure I’m not going to slide.  My balance is effected greatly by my CP, and my walker is supposed to aide in me feeling more secure.  Instead, I am constantly worried I am going to fall while standing due to the brakes not working.  This seriously impedes my ability to adequately progress when taking or teaching classes.  I was hoping that Kaye Products might be able to come up with some sort of add-on or block for the brakes in order to keep the walker a safe and secure assistive device. I know that Kaye Products manufactures All-Terrain wheels, but I am concerned that these wheels are too large and would also not address my needs.

In addition to this, the Kaye Products walker frame and setup is not the most easily maneuverable and agile. I understand the need to create a walker out of durable and sturdy material, but with that also comes a very heavy product.  I find it very difficult to fold my walker and lift it in and out of my car when driving. It is also very bulky and gets in the way when I am trying to complete certain exercises or demonstrate them for my class participants.  I am well aware that my needs and concerns are not that of a “typical” person with CP or another disability, if there is such a thing.  However, it is clear that there is no other market for assistive devices or people with disabilities who might be more active or need special modifications in addition to those provided.

Having been a longtime Kaye Products customer, I have always been pleased with your company’s products, customer service, and responsiveness.  It is my hope that you might be able to help me in at least coming up with a solution to the rear wheel brakes so that I may feel more secure when standing briefly.  I also hope that you will be compelled to think of ways to improve your product for those of us who live more active lifestyles.

Thank you for your time. I look forward to hearing from you to discuss these issues further.

Sincerely,

Molly Carta

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BADD 2013: It Starts With Us

It’s Blogging Against Disabilism Day 2013! A day dedicated to speaking out against disability discrimination of any kind, life obstacles of those with disabilities, etc.

I have been absolutely devouring the amazing posts that are flowing through today; there are some great writers with great thoughts and ideas out there in the Blogosphere. I encourage you to check out Dairy of a Goldfish, where all the posts will be listed, or the BADD Facebook Page.

This is my third year participating in the day. Two years ago, I wrote about intelligence and interacting with people with disabilities. Last year, I missed the actual BADD day, but my post about the dance of Cerebral Palsy brought you into my world of living with a disability, if only for a moment.

This year? Well, buckle up. I don’t really know how the idea for this post came to me or how it’s going to work into the theme of this day, but here we go. Knowing that BADD was coming up, I’d been jogging my brain trying to figure out what I wanted to put out in the world as a person with a disability.  My one small voice.

It’s taken me the better part of 24 years to be “okay” with having a disability.   I think some of this is because I tended to live life with blinders on and not even pay attention to it.  I had great friends and family who helped make it a non-factor in my life and, while this was a blessing, it also was a little bit of a curse.  Full disclosure: I hate that cliche, but I couldn’t think of anything else to write.

But then…life hits you. People are often rude or ignorant, situations aren’t ideal, you’re forced to be independent at times when you’d been used to relying on someone by your side. You can no longer wear those blinders, because this is real life. It’s not going to stop while you adjust.

There comes a point in your life when you have to recognize your situation and your limitations.  Being an adult now (arguably anyway-my sisters will tell you I’m still the baby), that point has come hard and fast over the past few years.  Now, trust me. I’m not, in any way, at all, ever, ever, ever (got it?!) saying that you should be defined by your limitations or let them control your life.  Quite the opposite actually. Recognize and understand them so that you can live your life for you and move beyond them, if that is the path you choose.

How does this fit into BADD?! Hold your breath, because some of you might not like what you’re about to read…

If you don’t want to be discriminated against, start by not discriminating against yourself.   

Simple as that, right? No. I’m not naive. I know it’s not that simple, but it’s the initial step on a long journey. Think logically for a second, and this goes for anyone whether you have a physical disability or other obstacle in your life, if you don’t want someone else to judge you, limit you, or assume something about you, why would you do those things to yourself? You tell your best friend that they can do anything they want, but then you tell yourself that you can’t? That doesn’t sound right to me.

I’ve learned something very valuable on my journey, and even more so now being a fitness instructor of a class for people with various limitations, and that is that we as people with disabilities are the role models of how other people with disabilities should be perceived and treated.  Whether we want to be or not.

Want people to believe in you, to give you a chance?

Believe in yourself.

Want people to treat you with respect and dignity?

Respect yourself.

Want people to understand just how strong you are, that you are not to be pitied?

Show your strength, do not pity yourself. 

Want to be heard, to leave something in this world?

Speak up and don’t be afraid to be a little vulnerable. Let people in.

IT STARTS WITH US!