Disclaimer: I just took my cough medicine with codeine, so we’re all pretty lucky if this post makes sense. Sorry in advance!
I’ve been thinking a lot today about the other “CP stories” I’ve heard from either people I’ve met in my life, or other bloggers that I’ve now developed connections with. The thought came after Greg over at The Casual Vegan (who you should definitely check out if you haven’t already in my previous posts) cross-posted the article I shared yesterday about the man who found joy and freedom from his CP via dance. Greg wrote that this man’s story was a lot like his own as far as doctor’s expectations and opinions about his abilities, as well as the ineffectiveness of much of his time spent in PT.
It’s so interesting/weird to me that so many of us out there, no matter the age, have all gone through the same old process of doctors, PTs, and, for some of us, surgeries. We have all gone and done our own things in life and have lived our lives the way we see fit, yet we’ve all been met with the same attitudes and expectations at one point or another by those doctors, PTs, etc. This is the hand we are dealt. We must live with it. Don’t expect to do this like your peers. You’re not going to be able to handle that. Whatever those things are for each of us, we’ve heard them.
I like to think that things are different now than they were when I was 5 or 6, or even before I was born. Yes, I’m sure they’re better, but they are nowhere near perfect. Children and adults with CP and other disabilities all over the country (don’t even get me started on world view, because it’s 100 times worse in MANY other countries) are still facing that invisible, yet powerful wall of can’ts and don’ts.
I guess it just makes me think…when will this gap start narrowing? When will so many of these health care professionals step up and start believing in their patients/clients/whatever you want to call them, the way they expect us to believe in ourselves? And why is it that we are always expected to lower our own expectations of ourselves to match their’s of us. I absolutely cannot imagine what my life would be like if I (and my parents) did that. I mean, come on; spinning, 5ks, and “normal” exercise in general have become my sanity. That certainly was not what was expected of this 3-month premature, 2lb 2oz baby!
Until they start to “get it”, I suppose we should just keep raising, and surpassing, our own expectations! After all, that’s much more fun than lowering ourselves to someone else’s!